On the heels of Duke University discovering the mutation in ATP1a3, Duke, in partnership with the European Network for Research on Alternating Hemiplegi ( ENRAH), facilitated a global gathering of researchers along with the heads of nearly every AHC Patient Advocacy group in the world. Our mission is to financially support research and therapies, improve quality of life and strengthen connections to the global AHC community.ĭecember, 2012 marked a historic time for AHC research and parent interaction. Their parents are truly exceptional people, managing never ending medical appointments, therapists, case workers, teachers, medical equipment providers, and other caregivers.Ĭure AHC is actively involved in finding ways to empower sufferers and their families to battle the complexities of living with this rare disease.Ĭure AHC envisions a world where Alternating Hemiplegia of Childhood no longer robs its sufferers of the chance to participate fully in life, and where no case goes undiagnosed for lack of awareness. We call those living with AHC “Champions,” for they triumph over the significant limitations of their disease in amazing ways! Despite these challenges, AHC Champions are very determined and good spirited children and adults. There is a spectrum of severity, with ranges from fully wheelchair-bound individuals to those who are able to live semi-independently. The hallmark of this disease is episodes of temporary paralysis that alternate from one side of the body to the other, sometimes engulfing the entire body, lasting anywhere from minutes to days at a time. The majority of cases (approximately 80%) are caused by mutations in the gene ATP1a3, as well as other potential genetic root causes, which Cure AHC funds active research to discover. AHC (Alternating Hemiplegia of Childhood) is a complex, ultra-rare neurological disease.

Ahc warbirds